Bibliothèque électronique gratuite

Families and End-of-Life Treatment Decisions- An International Perspective - Brigitte Feuillet

DATE DE SORTIE: 16/07/2013
ISBN: 978-2-8027-4066-7
AUTEUR: Brigitte Feuillet

Puoi scaricare il libro Families and End-of-Life Treatment Decisions- An International Perspective in formato pdf epub previa registrazione gratuita


"The book of life is the supreme book that we can neither close nor reopen at will". This quotation from Lamartine, the French poet, once a perfect illustration of neither the close of life in bygone societies, can no longer be said to apply. In fact, today, in one out of two cases in our modern societies, it is the medical team who closes this book without any intention of cutting life short. Generally, however, the physicians do not make this decision alone. While a competent patient increasingly participates in medical decisions, including when it's a matter of life or death, those nearest to him (usually the family but not always) endorse this responsibility once he becomes incapable of expressing his wishes. Many questions surround not only this concept of "nearest and dearest", or "loved ones", but aise their roles and legitimacy. Whether they act as the patients Iegal representative, authorised agent or trustee, or if they are stripped of all legal power, will the "doved one" be simply consulted by the caregivers on the presumed wishes of the patient regarding end-of-life choices ? Or must they guarantee him a genuine right of self-determination ? To this end, will they be granted a right of information only about the patients condition, or even access to his medical records ? Will their role be affected by the existence of living wills drawn up by the patient in question ? The outcome of debates between legal experts and physicians, philosophers and sociologists from seventeen countries, the chapters in this book analyse the current status and role of these relatives (and non- relatives) close to the patient at the end of life. Numerous European national laws are thus compared and are also benchmarked against other practices, in North and South America, in Africa and in some Asian countries. Beyond the legal, cultural and ethical differences that clearly separate these various traditions, a recurrent question arises: more than providing paternalistic protection, does the "loved one" not always have to ensure respect for what "their patient" would have wanted, thus guaranteeing up to the end of his lite a basic right, namely his decision-making autonomy ? If this book demonstrates the difficulty of such a task in different contexts, it also attempts to pave the way to a more humanistic approach across cultures to advocate respect for the patient at the very end of his lite.

...ents who have life-threatening diseases and a life expectancy of 6 to 12 months [1, 2] ... End-of-Life Care Family Meeting • LITFL • CCC Clinical ... ... .It helps patients to die in peace, comfort, and dignity [].Globally, the estimated number of people in need of end-of-life care is 20.4 million [].By 2040, an estimated 75% to 88% of patients at the end-of-life stage could benefit from ... The U.S. Supreme Court says Americans should expect palliative care, which combines active and compassionate therapies to comfort and support people and their families nearing the end of life. Psychologists can make significant contributions to improve the quality of end-of-li ... Families and End-of-Life Treatment Decisions - Ouvrage Larcier ... . Psychologists can make significant contributions to improve the quality of end-of-life care and decision-making. Families often avoid conversations about end-of-life care until an emergency forces them to start planning. "We end up trying to make these decisions under a greater degree of emotional strain or emotional distress," Duncan says. This high level of stress can create an environment that fosters conflict among family members. End-of-life decision making is one of the most difficult but crucial challenges faced by patients and their families. In most cases, resources or counselors providing guidance in these decisions are not available. This book is intended to prepare nurses, physicians, and other health care workers to fill this role, insofar as they are most frequently in contact with the patient and his/her ... Authors who study difficult and complex end-of-life decisions stress the need to distinguish personal perspectives on the transition, decision styles, and decision heuristics, and to educate those ... The goal of the study was to assess perceived level of satisfaction with end-of-life care, focusing on the last 48 hours of life. A previously validated instrument was used in a telephone survey with bereaved family members (n=90) of patients who died within an organization in British Columbia. Bereaved family members had many unmet needs for information about the patient's changing ... Families and end-of-life treatment decisions: an international study . By Brigitte Feuillet-Le Mintier. Abstract. Who are the people who are with us when we find ourselves at the end of our life ? Although family members continue to play an undeniable role, other people outside the family, such as nominated representatives, are accorded a rol Topics: international study, Families, end of life ......